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TOP 30 Rare disease support in Massachusetts
12 results found
Search for local businesses, places and services near you
Rare Disease Perspectives LLC
Rare Disease Perspectives LLC is a health institution located at 127 Western Avenue in Sherborn, Massachusetts, United States. Specializing in rare diseases, this institution offers unique insights and perspectives on managing and treating rare medical conditions. With a team of dedicated healthcare professionals, Rare Disease Perspectives LLC provides personalized care and support for individuals and families affected by rare diseases. Their mission is to improve the quality of life for those living with rare conditions through innovative treatments and compassionate care.
Pediatric Kawasaki Disease Program
The Pediatric Kawasaki Disease Program at 300 Longwood Avenue in Boston, Massachusetts is a specialized medical institution dedicated to providing comprehensive care for children with Kawasaki Disease. Our expert team of doctors and health professionals are committed to diagnosing and treating this rare and serious condition that affects the blood vessels in young children. With a focus on research, education, and patient-centered care, we strive to improve outcomes and quality of life for our young patients. Visit us today to learn more about our innovative approach to treating Kawasaki Disease.
Baystate Specialty Pharmacy
Baystate Specialty Pharmacy, located at 3300 Main Street in Springfield, Massachusetts, is a health institution that specializes in providing medication therapy for complex, rare, and chronic medical conditions. Our dedicated team works closely with clinical teams to ensure patients receive the specialized medications they need for conditions such as hemophilia, hepatitis C, multiple sclerosis, and more. Our commitment to quality and safety has earned us accreditation from URAC and ACHC, demonstrating our dedication to providing top-notch care to our patients. We understand the importance of proper medication storage to ensure effectiveness and safety, and our medication safety expert can provide guidelines on proper temperature storage.
Mylyfe Specialty Pharmacy
Mylyfe Specialty Pharmacy, located at 1111 Elm Street in West Springfield, Massachusetts, is a health institution that offers Specialty Pharmacy, Home-Infusion, and Infusion Suite services. Our dedicated team of pharmacists and nurses work closely with patients and their providers to ensure compliance and patient satisfaction. Whether receiving therapy at home or in our infusion suite, Mylyfe is committed to supporting patients every step of the way. Patients can sign up to receive exclusive emails and/or SMS messages about upcoming events, news, contests, and more. We provide medication delivery, nursing care, and infusion support directly to the patient's home, as well as infusions in a comfortable atmosphere by a highly trained team. Our goal is to ensure a successful and compliant treatment plan for each individual.
Baystate Children's Specialty Center
The Baystate Children's Specialty Center, located at 50 Wason Avenue in Springfield, Massachusetts, is a state-of-the-art health facility that opened in the fall of 2013. This facility brings together a wide range of pediatric specialty services, as well as a reference laboratory and pharmacy, all under one roof. The design of the center was inspired by the experiences of young patients and their families, with a focus on creating a nurturing and comforting environment. With over 57 bright and cheerful colors, the center resembles a playful and welcoming space similar to a children's museum.
The Miracle Marc Foundation INC.
The Miracle Marc Foundation INC. is a non-profit organization located at 329 Bay Street in Springfield, Massachusetts, United States. Our mission is to provide support and resources to individuals and families affected by rare diseases and medical conditions. Through fundraising events, community outreach programs, and advocacy efforts, we strive to make a positive impact on the lives of those facing health challenges. Join us in our mission to bring hope and healing to those in need.
Progeria Research Foundation
The Progeria Research Foundation, located at 200 Lake Street in Peabody, Massachusetts, is a school and university dedicated to finding treatments and a cure for Progeria and its aging-related disorders, including heart disease. Progeria is an ultra-rare, fatal disease that causes rapid aging in children. Without the FDA-approved treatment lonafarnib, children with Progeria typically die of heart disease at an average age of 14.5 years. PRF is the only non-profit organization solely focused on finding treatments and a cure for Progeria, and has been making significant progress towards this goal. The institution aims to connect families impacted by Progeria, provide resources and support, and ultimately improve the lives of those affected by the disease. Through lonafarnib clinical trials and fundraising efforts, PRF has been able to extend the lives of children and young adults with Progeria. Donations to the Progeria Research Foundation help treat children with Progeria today and work towards a future cure. The institution also organizes events such as the Boston Marathon to raise awareness and funds for their cause. Join PRF in their mission to make a difference in the lives of children with Progeria.
Inclusive Fitness
Inclusive Fitness is a gym located at 1665 VFW Parkway in Boston, Massachusetts, United States. Our institution specializes in adaptive fitness programs for individuals with disabilities and special needs. We offer comprehensive and tailored workouts for neurodivergent individuals, accommodating a range of intellectual, physical, mental, and sensory needs. Our goal is to redefine fitness for every athlete, including those with conditions such as autism, Down syndrome, cerebral palsy, brain injury, ADHD, rare genetic disorders, and other special needs. Our adaptive fitness programs are designed to cater to all abilities, promoting individual growth and success within a sensory-friendly environment.
Amyloidosis Center at Boston Medical Center
The Amyloidosis Center at Boston Medical Center is a leading institution dedicated to the diagnosis, treatment, and research of amyloidosis, a rare and complex group of diseases characterized by the abnormal accumulation of amyloid proteins in various organs and tissues. Located at 830 Harrison Avenue in Boston, Massachusetts, this center offers state-of-the-art medical care, innovative treatment options, and a multidisciplinary team of experts specializing in amyloidosis. Patients can expect personalized care, cutting-edge research, and access to clinical trials aimed at advancing the understanding and management of this challenging condition. The Amyloidosis Center at Boston Medical Center is committed to improving the lives of individuals affected by amyloidosis through compassionate and comprehensive care.
Choroideremia Research Foundation
The Choroideremia Research Foundation is a non-profit organization dedicated to funding research and finding a cure for Choroideremia, a rare genetic eye disorder that causes progressive vision loss. Located at 23 East Brundreth Street in Springfield, Massachusetts, the foundation is committed to supporting innovative research projects and raising awareness about this debilitating disease. Join us in our mission to improve the lives of those affected by Choroideremia and ultimately find a cure.
Baystate Infusion Suite - Springfield
Baystate Infusion Suite in Springfield, Massachusetts, is a health institution located at 2 Medical Center Drive. We offer medication infusion/injections, blood transfusions, hydrations, and more for all patients in need. Our skilled nursing staff provides compassionate care, and consultations with pharmacists are available before, during, or after appointments. With convenient scheduling options and weekend appointments, we aim to make access to care seamless. In case of a medical emergency, we are only steps away from the main hospital, ensuring quick and competent care. Our dedicated parking garage and pick up/drop off location make it easy for patients to access their appointments.
Kalydeco
Kalydeco is a leading health institution located at 50 Northern Avenue in Boston, Massachusetts, United States. Specializing in cutting-edge treatments and therapies, Kalydeco is dedicated to improving the lives of patients with rare and chronic diseases. With a team of expert healthcare professionals and state-of-the-art facilities, Kalydeco is at the forefront of medical innovation and research. Patients can expect personalized care and support to help them achieve optimal health and well-being.
List of local businesses, places and services in Massachusetts
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