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TOP 30 Rare disease support in Boston, MA
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Amyloidosis Center at Boston Medical Center
The Amyloidosis Center at Boston Medical Center is a leading institution dedicated to the diagnosis, treatment, and research of amyloidosis, a rare and complex group of diseases characterized by the abnormal accumulation of amyloid proteins in various organs and tissues. Located at 830 Harrison Avenue in Boston, Massachusetts, this center offers state-of-the-art medical care, innovative treatment options, and a multidisciplinary team of experts specializing in amyloidosis. Patients can expect personalized care, cutting-edge research, and access to clinical trials aimed at advancing the understanding and management of this challenging condition. The Amyloidosis Center at Boston Medical Center is committed to improving the lives of individuals affected by amyloidosis through compassionate and comprehensive care.
Pediatric Kawasaki Disease Program
The Pediatric Kawasaki Disease Program at 300 Longwood Avenue in Boston, Massachusetts is a specialized medical institution dedicated to providing comprehensive care for children with Kawasaki Disease. Our expert team of doctors and health professionals are committed to diagnosing and treating this rare and serious condition that affects the blood vessels in young children. With a focus on research, education, and patient-centered care, we strive to improve outcomes and quality of life for our young patients. Visit us today to learn more about our innovative approach to treating Kawasaki Disease.
Progeria Research Foundation
The Progeria Research Foundation, located at 200 Lake Street in Peabody, Massachusetts, is a school and university dedicated to finding treatments and a cure for Progeria and its aging-related disorders, including heart disease. Progeria is an ultra-rare, fatal disease that causes rapid aging in children. Without the FDA-approved treatment lonafarnib, children with Progeria typically die of heart disease at an average age of 14.5 years. PRF is the only non-profit organization solely focused on finding treatments and a cure for Progeria, and has been making significant progress towards this goal. The institution aims to connect families impacted by Progeria, provide resources and support, and ultimately improve the lives of those affected by the disease. Through lonafarnib clinical trials and fundraising efforts, PRF has been able to extend the lives of children and young adults with Progeria. Donations to the Progeria Research Foundation help treat children with Progeria today and work towards a future cure. The institution also organizes events such as the Boston Marathon to raise awareness and funds for their cause. Join PRF in their mission to make a difference in the lives of children with Progeria.
Inclusive Fitness
Inclusive Fitness is a gym located at 1665 VFW Parkway in Boston, Massachusetts, United States. Our institution specializes in adaptive fitness programs for individuals with disabilities and special needs. We offer comprehensive and tailored workouts for neurodivergent individuals, accommodating a range of intellectual, physical, mental, and sensory needs. Our goal is to redefine fitness for every athlete, including those with conditions such as autism, Down syndrome, cerebral palsy, brain injury, ADHD, rare genetic disorders, and other special needs. Our adaptive fitness programs are designed to cater to all abilities, promoting individual growth and success within a sensory-friendly environment.
Kalydeco
Kalydeco is a leading health institution located at 50 Northern Avenue in Boston, Massachusetts, United States. Specializing in cutting-edge treatments and therapies, Kalydeco is dedicated to improving the lives of patients with rare and chronic diseases. With a team of expert healthcare professionals and state-of-the-art facilities, Kalydeco is at the forefront of medical innovation and research. Patients can expect personalized care and support to help them achieve optimal health and well-being.
The Innovation Trail
The Innovation Trail offers a unique way to experience, learn about, and be inspired by four centuries of groundbreaking innovations that originated in Boston. Whether you join one of our scheduled walking tours or use our website as a guide for your own stroll, you'll explore the rich history of science, medicine, entrepreneurship, and technology that has shaped the modern world. Our aim is to inspire you to create the next great innovation!What to Expect: When people think of Boston, they often think of the American Revolution or its prestigious educational institutions like MIT, Harvard, and Northeastern. While the Freedom Trail highlights the city’s revolutionary past, The Innovation Trail focuses on the remarkable advancements that followed America's independence and the establishment of early schools like Boston Latin (1635) and Harvard (1636). Boston’s legacy of innovation was built on a foundation of independence and education, bolstered by societal changes such as the abolition of slavery, women’s suffrage, waves of immigration, and marriage equality. These factors allowed a diverse group of people to collaborate on research and company formation, funded by investors, universities, and government agencies. This thriving innovation ecosystem has significantly contributed to shaping our modern world.Who Should Visit:
Landmark Bio
Welcome to Landmark Bio, your premier partner in advancing cutting-edge therapies from concept to clinic. Located at 300 North Beacon Street, Watertown, Massachusetts, we specialize in transforming today's pioneering research into tomorrow's life-changing therapies. Whether you're an academic researcher, a physician scientist, a startup innovator, or a technical operations executive, Landmark Bio is here to help you navigate the complex journey of drug development with unmatched expertise and state-of-the-art facilities. Our comprehensive services go beyond manufacturing cell and gene therapies, genome editing, and mRNA products. We offer a full spectrum of capabilities, including translational research, process and analytical development, GMP manufacturing, quality control, and regulatory CMC support. Our holistic approach ensures that we provide the necessary guidance and solutions to bring your projects from discovery through to commercialization.
List of local businesses, places and services in Massachusetts
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