Metrodora Institute 3535 Market Street, West Valley City, UT 84119

"While it is superficially beautiful and supportive and the people are kind, ultimately, Metrodora will drain your resources—even with insurance. Not just monetarily. They set a new standard for disorganization in the medical landscape. You will spend countless hours over many months chasing mystery bills, unapproved prescriptions, and doctors who simply fail to show up (or quit altogether). The staff who deals with insurance doesn't seem to know as much as the average sick person about insurance. It's a shame, because I do feel Metrodora was started with the best intentions. The staff there have good hearts, and the PTs and OTs are finds for sure. We desperately need more care in this space. However, you would do better to watch the free videos from the Bateman Horne, and take those ideas to your local doctors. (Better yet, get your docs to watch their provider education series.) However 'meh' your local docs may be, they will likely connect you to the limited resources available to our patient group cheaper, faster, and with far less hassle than Metrodora. And if you'd like to burn through 4-5 figures of your cash, consider donating to the excellent work they are doing at the Bateman Horne. Please remember: NO clinic has the cure for these diseases, because the research simply hasn't been done. There is no cure being gatekept at Metrodora (except they did buy up all the SmartPills in the West). While it is gratifying to be heard and understood at Metrodora, it will not result in meaningful health outcomes above and beyond what you can get (with much, much less hassle) from even an average local care team. If you just want to find PTs and OTs in this disease space and already live in SLC, then I might recommend still going to Metrodora (only if within insurance coverage). But even as a local, I would personally skip the "rock star" main doctors—while they can order tests and "find stuff", there doesn't seem to be much they can really DO about it, and you'll be in the fight of your life to try to pursue the rabbit holes they send you down. Early on, you'll feel like you're onto something as they promise you the moon, but you're in for the fight of your life to get it. I too felt hope initially, and I wonder how many good reviews were written in that honeymoon between what feels like a fruitful first visit, and the absolute slog of a pointless battle that follows to get any continued care. I am aware that Metrodora is responding to some of these messages saying they tried to contact reviewees and make things right. I have spoken in depth with Metrodora about my concerns, and will be transparent that they returned a very small fraction of the money I spent with them (about $900 out of an overall ~$9k+ outlay including budget travel from one state away). I have considered engaging in a class action lawsuit before they bleed other patients dry, but honestly, I'm just too sick to pursue it. Meanwhile, I have been extremely lucky to also be a patient at the Bateman Horne, and cannot say enough good things about them. The doctors are knowledgeable, generous, and QUICK—prescriptions are filled that day or the next. Although they are no longer taking patients, they are openly sharing what they're learning across multiple platforms. Please, please consider supporting them instead. (In response to Metrodora's review below: Thanks for the kind response. As I have said in multiple "reach outs" to you—PLEASE return my money in full. That is best way you can support me. Compromised patients like myself cannot afford to support your growing pains. I came to Metrodora to establish gastro care with Dr. Laura Pace, and she quit without notice and without continuity of care, which is a form of malpractice. Thanks in advance for your consideration.)"

"As a patient with Ehlers Danlos, Mast Cell Activation Syndrome and all the co- morbidities I really wanted to believe the dream. To be able to go to 1 facility and have this vast base of knowledge to literally discuss my situation as a team. To be treated differently than other specialists with unique treatment plans and research. The red flags started when we started seeing negative reviews from patients and former employees. Then we couldn't get ahold of anyone through the portal or by phone. Next we couldn't get a timeline as to how long we would need to stay so ended up booking the entire week paying for Airbnb and rental car for non-refundable days. On day 1 I met with an incredible diagnostician (who had already turned in his 90 days notice unbeknownst to us). He listened and and we were very impressed. The next Dr was for migraines and she's never there. You sit in a room alone and have a zoom appointment. We were definitely not told about this prior. Oddly my doctor's notes for this visit included vitals, her saying I had no signs of rash, etc. Vitals were not taken and she only saw me from mid-chest up. I had a rash all over my torso. Over the next few days I endured $$$ tests that are worthless as I wasn't told to go off certain medications on some, others there was a lack of skill by technicians. Very nice but performed testing incorrectly. The very next week 2 of the specialists were no longer part of the Institute including the diagnostician and the co-founder. There was no one to give me results and portal messages went unanswered still. No one to provide a treatment plan. We paid $3500 for whole genome test that ultimately was refunded because the labs were not sent off. How does this happen?? I also know it happened to others. Finally got a response to portal and they wanted us to return to see 2 doctors but neither would be on site! So we would be leaving our home that's a 17 hour drive away to sit in an office for a zoom meeting with a Dr in California and one in New York.?! We didn't return as not only is that ridiculous but just the travel alone was so high risk and $$$--and they still couldn't tell me how many days we would need to be available. After multiple requests my primary Dr was finally able to get some of my test results and paperwork. Since then I have met other victims of MI and learned they also went through the same tests. I understand they are trying to build the biobank but unnecessary tests being done to fill it should be paid via research budget- not $$$ by patients. The dream was far from reality and was traumatic to myself and many others I have connected with sense. It is UNACCEPTABLE to be told they have made improvements when I know people currently going that are still going through the same."

"Update: They reached out and listened to my frustrations/suggestions. They were honestly very grateful and are already implementing changes. My first follow up visit went pretty well too. I really think they can be a great place if they can get these issues resolved since the Doctors are next level. Original: This is one of the most dysfunctional medical experiences I have ever had or seen (and I work in the medical field). The actual Dr appointments were fine, but the surrounding situation is awful. They charge you $2,000 for a "membership" that gets you nothing. The communication and knowledge of the staff is nonexistent. You are constantly having to keep track of everything yourself and call them to remind them to do their job. I'm still hoping that somehow the Dr's pull through, but I have lost all trust in this place as a whole."

"Everyone at Metrodora literally changed my life. I developed autonomic dysfunction symptoms shortly after having a baby. Every doctor I saw prior to finding Metrodora chalked my symptoms up to postpartum depression and anxiety. By the time I found the providers at Metrodora, I could barely get out of bed because my symptoms were so severe. All of the providers at Metrodora work as a collaborative team using various forms of therapies and providers from different specialties. It is so wonderful to be able to have my entire team in one place. The doctors are some of the most kind and compassionate providers I’ve ever worked with. I left my first appointment in tears because I finally felt heard and seen. The nurses are absolutely amazing and go above and beyond to make sure everything with your care runs smoothly and they are so incredibly kind and empathetic. The various therapy providers are so knowledgeable and help adapt your therapy to actually work with your lifestyle. I cannot express my gratitude and appreciation for this place enough! I am beyond grateful to have found Metrodora and be able to start getting my life back!"

"We love Metrodora. Love. It is an amazing group of caregivers who are going the extra mile to improve the health of three of my children (and my husband and myself are on the wait list). We travel from a nearby state. The wonderful M Cafe makes life so much easier- and tastier! Traveling with dairy free, gluten free, and lemon-lime-orange-and tomato free is not fun or easy. We enjoy the food, and we load up for the drive home! We are so grateful for all of the providers and employees who are building Metrodora from the ground up. Kasey Mitchell is custom making a support head rest/neck support to help my son survive the drives with cervical instability. Our patient care manager, LynDee, is a huge help (coordinating schedules for multiple patients with multiple providers is not an easy task). An NP for the neurologist (Ashley) went out of her way to help us get a peer to peer review for an imaging study. She saved the day when our insurance made something simple overly complicated. Yes, there is a wait list (it is worth it!). Any new cutting edge research institute that is building a new model for care and (that also needs to support itself as a sustainable business) is going to have growing pains. But be patient (and excited!). Metrodora is going to change lives as they change understanding of complex medical diagnoses."