Center For Human Genetics

"Dealing with this office has been the single worst medical experience of my life. I got labs taken 4.5 months ago and they still haven’t sent the blood work to the lab and thus I do not have my results. They keep telling me it’s my insurance but I have confirmed that my insurance approved it. I am at a loss about what to do."

"It took 6 months for the Center for Human Genetics to call me to book an evaluation. The earliest date to get an appointment was 6 months out. It is now 6 months after I went in for my evaluation and despite me reaching out several times, I have yet to receive my genetic testing results. For reference, when I went in for the evaluation, they said it would take 3-4 months to hear back about results. Today I called and the front desk informed me that they have had my results since May, but the doctor has not signed off on them. It's been a year and a half since I was referred for genetic testing. This is unacceptable."

"Dr Jeff Milunsky is an extremely effective and straightforward genetics doctor. As long as you’ve shared your records and answered him thoroughly, you can expect magic. I wouldn’t hesitate to recommend his practice to anyone."

"I just had a visit here with Dr. Aubrey Milunsky for suspected connective tissue disease of some kind. It was overall a difficult experience, but a valuable one, and so I wanted to share it with others. The doctor is clearly knowledgeable and passionate, and the questionnaire he asked was very thorough. If you are looking for answers, or have been dismissed in the past, you will appreciate the thoroughness and extensive knowledge here. I trusted Dr. Milunsky as an expert in his field. However, I wasn't told what to expect or given any guidance, and I think this would have been very helpful. You are asked a long list of questions where you're told not to elaborate and to only give clear yes/no answers (as well as discuss frequency with precision such as daily, often, occasionally, rarely). Try to elaborate or tell a story and you will be cut off. It was challenging for me, especially as someone who has had bad experiences around medical professionals and was nervous. A little preparation and forethought would have seriously mitigated this for me. When I got flustered early in the appointment, the doctor made comments such as "yes we covered that, do you have ADHD?" and "you need to look at notes to tell me about your symptoms?" which made me feel embarrassed. Dr. Milunsky has been doing this for decades, so I imagine he may forget how new this approach is to some patients. But regardless of all of this, getting in to see the doctor has felt like a turning point in my diagnosis and I may finally be on the right track. I would still do this again, but I would have liked the warning in advance so I knew what to expect (or how to be better prepared). Key takeaway: the focus here is on information and getting you answers- not a bad thing, and the expertise here is invaluable, but do not expect a soft and gentle approach."

"I showed up today for my first appointment. This was the second appointment scheduled but I had to reschedule my first appointment because the referral never got done. I showed up early as requested and the woman working the first desk seemed shocked that I was there early. She was very abrupt. She was also not wearing her mask and had left her mask on the part of the desk that patients use, I had to move her mask to get a clipboard to fill out my paperwork. While I was filling out my paperwork she was having a pretty loud conversation with a coworker in which she was complaining and swearing. By the time I finished my paperwork she was on the phone with my insurance. She was told by my insurance that I needed a prior authorization to which she seemed baffled and was even more baffled when they told her that no, they couldn’t just do it right now. I have had this appointment scheduled for more than two months. There is zero reason she should have been calling about a prior authorization after I arrived. I do not live close to Boston. It is a 3 hour drive for me. I had also called the day before just to double check that everything was all set before I drove all the way out there and was told that everything was all set. When she got off the phone with my insurance she didn’t apologize, she just said “when do you want to reschedule?” I told her I didn’t. She seemed shocked again. She said “Well sorry I guess, good luck finding another geneticist” in a very foul tone. I will not be rescheduling and will never refer anyone to this office. I understand that everywhere is having staffing issues at the moment but the whole interaction was completely unprofessional and unacceptable."